An Anniversary of sorts

Filed in Health

It’s 10 years since I was diagnosed with lupus.

During those 10 years, I’ve gone through four doctors, not because I’m fussy but because lupus involves different organs in the body, and those four doctors have included a dermatologist (skin), a nephrologist (kidneys), and two rheumatologists (joints). I saw two rheumatologists because the first one decided to migrate to Australia and the second (my current main lupus-related doctor) is his successor at the medical centre I go to.

Apart from the first year when I was totally blur about the condition (I still remember asking the dermatologist “what is lupus?” and being told “now, you must not listen to anyone but me …”), I began taking an active interest in the management of my condition from the second year onwards.

This self-management is due in part to the Internet which has provided a lot of information about the condition. It has also been encouraged by an understanding rheumatologist who listened to me whenever I went to see him and who never gave me the impression that he didn’t think I knew what I was talking about. In fact, he gave me the impression that he enjoyed our little consultations and that he was learning something from me as my condition was being cared for by him. This encouraged me to share with him things I read from the Internet.

I hope his successor is like him.

This morning, I was browsing the latest articles from when I came across an article about lupus, “Immune Antibodies May Be Key to Lupus-Linked Memory Loss”.

The article got me very excited cuz it pointed to a possible explanation why I’m suffering more than my share of memory lapses, more so than other people my age.

I look forward to showing the article to Dr Y this Saturday and asking her opinion about it.

And I really shouldn’t worry too much about whether she’s going to be anything like Dr L. They all have their own styles, and from my couple of exchanges with her so far, things look good with her.

After all, she’s the one who was quite impressed with my bp reading the first time we met, saying I have the bp of someone half my age.

Niece Update

Filed in Family

It’s a month since my niece Winnie returned from her bone marrow transplant in Perth, Australia.

Right now, she’s in the hospital, down with a virus infection that requires an antibiotic IV. Her lack of appetite has also caused her to be a little under-nourished so that there’s another IV going into her, directly feeding her nutrients that she has not been getting. Actually, I think her lack of appetite is due to her being a fussy eater, thanks to an over-indulgent mother (my own sister, no less).

Her white blood cell count is also down, and the hospital’s had to give her growth injections to help boost the cell count.

When we were preparing for her transplant, we were given materials to read and prepare us for what she might go through. We read that the first 100 days after the transplant would be the most crucial as her body would be fighting the new marrow and treating it as an “enemy”.

There is a name for this condition and it’s called Guest vs Host Disease (GVHD).

For the first two months after the transplant, Winnie showed little signs of the reaction that we’d all read about. Which should be good. But my sister worried that something must be wrong. It was too good to be true.

Now I’m wondering, too. It’s only towards the end of the crucial 100-day post-transplant period that Winnie is showing those reactions, especially the ulcers.

Has something gone wrong?

But something my friend Beth Chin told me is helping me at this time – we need to go through the bad, and this, too, shall pass.

Besides, Winnie is under excellent care and in the Hands of the One who knows what’s best for her. Even though she has not accepted Him yet, she is still His creation. And I believe, with all my heart, that her name is in His Book of Life.

One of those days …

Filed in Personal

Thought too much …

Worried too much …

… all for nothing.

Meanwhile, much bigger issues out there, which make my selfish little worries SO insignificant. Which they are …

Check out VaLz’s post here:

In Need of Supernatural Power

40 minutes later …

Filed in Stress Busters

He was up for a bit, and looked like he had a hangover. Too much bamboo?

After which, he went back to sleep.

Sunday morning at the San Diego Zoo

Filed in Stress Busters

If a picture’s worth a thousand words, then I’ve done my lines for today!

Caught a picture of a sleeping Mei Sheng on his favourite perch. The little paw tells you what is what on the black and white fur ball.

More “live” Me Sheng action